When is the ideal time to have leg surgery?
Probably any time to be honest - but Qasim has had his last week, right at the beginning of the school holidays!
On the bright side - he wont miss any school.
On the down side - he wont miss any school. 😂
Surgeries are always a worry for us - Qasim gets this condition under anaesthetic called malignant Hyperpyrexia. The clue is in the word malignant - it's not good.
This results in something else called Metabolic Acidosis which results in organ shutdown - so any surgery for us is even more of a worry than normal.
End solution has been to change the anaesthetic to one less associated with this reaction - which has worked so far.
So as you can see one of the great things about Osteogenesis Imperfecta is that it is not just about Osteogenesis Imperfecta. It's all the other stuff around it - like Malignant Hyperpyrexia. Like endless physio. Like huge hospital waits. Like missing school holidays because of surgeries.
But with every cloud there's a silver lining - we've met some amazing families all on a similar journey to ours. We've had some amazing staff help care for Qasim when he's needed the support.
Sometimes you just have to focus on the good bits even through the bad bits.
