Showing posts with label wishbone day. Show all posts
Showing posts with label wishbone day. Show all posts

Sunday, 5 April 2015

Holidays...

Easter holidays are here!
We haven't had a bad run of late.
A few niggly issues with the recurrence of scoliosis which seems to have popped up over the last 6 months and appears to have a few professionals in a flap.
A few broken fingers over the last few months  but nothing we can't handle at home.
And......
We are braving the theme park world and are soon to be visiting Thomas Land,  courtesy of the 2 yr olds love of all things Thomas  and trains.

So we are really hoping they are wheelchair/disability friendly,  and there are some good activities that everyone can get involved in. ..... Mmmmmmmm -  there maybe a Thomas Land Review coming up!

And don't forget Wishbone Day is coming up next month.  Awareness makes a huge difference  -  it's not about the money!  Xxx

Monday, 2 March 2015

Wishbone Day 2015

For those of you who don't know, wishbone day is on May 6th.  Wishbone day is a world wide awareness day of a condition called Osteogenesis Imperfecta, which my son has - also known as brittle bone disease.  The colour for Wishbone day is yellow...... So throughout March, April and May,  all yellow items will have a 15% discount  at Crochetknows.  Just mention code Wishbone15 when ordering. 
For more information on Osteogenesis Imperfecta go visit www.brittlebone.org and you can follow our story here.
Because Awareness Makes A Difference.

Just go to www.facebook.com/crochetknows to order and browse xx

Sunday, 4 May 2014

No news is good news.....

They say no news is good news.
So this should be a warning that we have news.......
It has been such a long time, but since our last foot fracture waaaay back in about 2010, we have been pretty fracture free. Not including the odd finger here and there.
So today the sun is shining, the birds are singing and we get a letter from the childrens hospital that Qasim's vitamin D levels are low. So low as to be shocking.  (20-50 is deemed normal. Qasims is just over 7).
So we have the bright idea of doing some extra playing outside in the garden - soak up some of that sun and get that vitamin d boosted as naturally as possible while we wait for the gp to prescribe the supplements we need.

And thats when our 4 yr fracture free record is broken - quite literally.

It wasn't a fall or a trip. It wasn't anything dramatic like a football or a spare tennis ball flying around. One minute Qasim was fine, the next his foot gave way. Nobody near him, no knocks or bumps.

I guess this is the part of OI that we have forgotten about.
Sometimes there is just no reason to break. There is no sinister trauma or 'accident'.

My little man broke his foot just looking at the grass, listening to the birds and enjoying the sun.
So the rest of this beautiful sunny day was spent in hospital and having x rays done.
But at the end of the day we really have had an easy time the last few years.  We have seen our friends fracture over and over. Some have had fractures that just wont heal. Some have been stuck in hospital for weeks while dr's poke and prod and play guessing games, unable to give them a diagnosis.

So I guess one fracture in four years is really bloody brilliant!