Surgery, Legs, School Holidays!

When is the ideal time to have leg surgery?
Probably any time to be honest - but Qasim has had his last week, right at the beginning of the school holidays!
On the bright side - he wont miss any school.
On the down side - he wont miss any school. 😂

Surgeries are always a worry for us - Qasim gets this condition under anaesthetic called malignant Hyperpyrexia. The clue is in the word malignant - it's not good.
This results in something else called Metabolic Acidosis which results in organ shutdown - so any surgery for us is even more of a worry than normal.
End solution has been to change the anaesthetic to one less associated with this reaction - which has worked so far.

So as you can see one of the great things about Osteogenesis Imperfecta is that it is not just about Osteogenesis Imperfecta.  It's all the other stuff around it - like Malignant Hyperpyrexia. Like endless physio. Like huge hospital waits. Like missing school holidays because of surgeries.

But with every cloud there's a silver lining - we've met some amazing families all on a similar journey to ours.  We've had some amazing staff help care for Qasim when he's needed the support.

Sometimes you just have to focus on the good bits even through the bad bits.

Hi all!

Hi all!
I can't believe it's been so long.... Again!
The broken arm is healing nicely,  but had to be left displaced.  Surgery to straighten it out wouldn't have worked,  so we have had 6 months of nice healing. Another 6 to go before its completely sorted,  but there's no pain and Qasim can use his arm almost as much as before! 
The moral of this story for Qasim is that x box is not worth rushing through the kitchen for -  but it's a struggle to stop him trying to shoot off again. 
But yet again we have seen how fab our local hospital is,  and how great the staff are.  We even had a nurse nip to Costa for us and get us a cuppa tea because of the really long wait for the plaster room.
That's not to say we love hospitals,  but at least when we have to go we know the staff are all great. 
Unfortunately,  one of my fellow OI mums has had some recent problems at their local hospital with unresponsive (very probably over worked!)  staff,  but we are extremely thankful for our local nurses,  doctors at consultants. 
What's coming up?
Transition to high school (gulp!)  and leaving primary school.  I think both will be harder for me than Qasim!