This is our first blog for Qasim's Story.
For those of you that don't know us, Qasim is 6 yrs old, going on 16!!
He has a rare genetic condition, Osteogenesis Imperfecta (OI), also known as brittle bone disease.
Our aim is to raise awareness of OI, because awareness does make a difference.
So far,our OI journey has been a roller coaster ride of sorts. From being told Qasim would not survive birth (his OI was picked up in utero), to then having a life expectancy of 2 weeks being definate lows. The highs have been surviving the first year, taking his first independent step age 5 after surgery, and currently planning his first experience of school for this September.
I'm sure there will be loads to blog with this little guy's attitude!